Tuesday, April 12, 2022

Legislation to Help Diagnose Children with Rare Diseases

The Ending the Diagnostic Odyssey Act would help provide relief to children and their parents by allowing states to conduct Whole Genome Sequencing (WGS) services for children on Medicaid with a disease suspected to have a genetic cause. The average diagnostic odyssey is 7-8 years. That's too long. Please learn about this and let your representatives and senators know that you support this very important piece of legislation.



Learn more!

Click here to read the text of the bill.