About WRAP

MISSION STATEMENT: WRAP (Worldwide Rare Advocacy Partnership) is an international partnership of Rare Disease professionals. Our mission is developing greater professional talents, sharing knowledge and providing resources - across the Rare Disease Stakeholder Network. We are passionately focused on being a moral and ethical voice in the Rare Disease advocacy community.

WRAP (Worldwide Rare Advocacy Partnership) is a group of Patient Advocates who came together in 2021 to fill a void in the Rare Disease community that created a professional environment for advocates to work together.

Co-Founded by 6 seasoned Patient Advocates, WRAP strives to do good for all of Rare Disease.

Partnership in WRAP is invitation only and Chartered.

WRAP freely and often collaborates with others outside of the partnership and welcomes opportunties.